So it's not 430pm and the tests for the day are through. I have gotten the CT's done and the PICC line is placed. The xrays have been taken to see that it's in its proper place... and now I wait. Nobody is around me right now... they are all on their way though. It's really weird to think that I have a tube running through my arm into my chest. So So So So yeah. Clear liquids only for me for quite some time now... I hope that I get use to it.
On the list tonight... COLONOSCOPY PREP! Yay for me! I hope that it goes quickly. I think that I am done writing for now... I need to sleep or something...
31 August 2009
Monday Afternoon... The plan for today is known
So I got here this morning around 730am... It's currently around 140pm and I just found out the entire plan for the day. Currently I am drinking an INSANE amount of contrast so they can do a CT on my entire torso. When I say insane, I really mean it. I have 3 450ml bottles that I have to drink in 30 minutes. And this stuff SUCKS! It's a cross between lemon lime jello, club soda, and chalk. I am hoping that this is all worth it in the end and they can actually see something when they get in there and look. I'm just glad that it's CT's and not MRI's. I hate being in the enclosed machines! Not that I am clostrophobic or anything... I just don't like the sounds of the magnets swirling around my head. It's all worth it in the end though if I get answers and relief.
When I get back from that... they are going to put a PICC line in my arm. From this they are going to give me nurtition for the next couple weeks as they attempt to give my bowels a rest. They will also use this line to pull all my labs and push all my meds for the next little bit from. It kinda scares me because it's a pretty long line they have to feed into my arm so that it sits in one of the main arteries next to my heart. That's a little scary to think about. I know that they do this all the time and all that jazz... but this is the first time that I will be having this done. I have a lot of questions that I will be asking when the nurse comes to do it.
Now time to go to CT.... See you all in a bit
When I get back from that... they are going to put a PICC line in my arm. From this they are going to give me nurtition for the next couple weeks as they attempt to give my bowels a rest. They will also use this line to pull all my labs and push all my meds for the next little bit from. It kinda scares me because it's a pretty long line they have to feed into my arm so that it sits in one of the main arteries next to my heart. That's a little scary to think about. I know that they do this all the time and all that jazz... but this is the first time that I will be having this done. I have a lot of questions that I will be asking when the nurse comes to do it.
Now time to go to CT.... See you all in a bit
Monday.... Just got to the hospital
So I am finally in the hospital. For once I would love to go a year without being in the hospital. But that is the unfortunate thing about being in my postition. They haven't had any luck with Pharmacueticals in controlling my disease. I am glad that I have found a doctor that is working very hard to try and make me feel better. I have also become a better patient. One of the biggest mistakes that I use to make was that I would take some things for granted. Even the little changes in what your body is doing matters, and your doctor can't help with something that they don't know about.
Here's what I do know at this point.......... Absolutely nothing! I am sitting here and don't know what they have planned for me. I know that what the doctor and I talked about last week was that they would tap a main line that they would feed me from for a while and also do some CT scans on practically everything today and I have a colonoscopy scheduled tomorrow along with some other tests and such. I hope to know more about what is really happening with my disease by Wednesday and have answers on what the next steps are by Friday. If this all happens or not... I am not so sure... but I am trying to keep positive!
Thank you all for reading. I know I will be posting a lot on here throughout the week, so please stop by whenever and check it all out
Here's what I do know at this point.......... Absolutely nothing! I am sitting here and don't know what they have planned for me. I know that what the doctor and I talked about last week was that they would tap a main line that they would feed me from for a while and also do some CT scans on practically everything today and I have a colonoscopy scheduled tomorrow along with some other tests and such. I hope to know more about what is really happening with my disease by Wednesday and have answers on what the next steps are by Friday. If this all happens or not... I am not so sure... but I am trying to keep positive!
Thank you all for reading. I know I will be posting a lot on here throughout the week, so please stop by whenever and check it all out
27 August 2009
Still trying to wrap my head around this....
So I went to see my doctors yesterday. First was a check up with my Rhumeotologist so he could check up on my back and see how the Humira was working toward releaving the pain from my Arthritis. He wasn't happy to hear that I was still in pain. From what he saw in my bloodwork and such, the thought that I should be feeling the relief by now... but alas no. So he wants to give it another 5 weeks and see how I feel before trying to determin if it is mechanical instead of muscular. Until then I get to stay on the Fentanyl patches so I can actually go about my day. I absolutely HATE being on pain meds all the time. Most of the time they don't really do anything to me outside just making the pain go away, but every now and again it will hit me and I don't know which way is up! It's the worst when it happens at work and I actually need to focus on something important. Anyways, I hope that this gets better soon! I can't take much more of not being able to get through the day without back pain
So right after I saw the Rhumeotologist, I went down and saw my GI. He wanted to see me because my body was falling apart and I called him to tell him that earlier this week.
So right after I saw the Rhumeotologist, I went down and saw my GI. He wanted to see me because my body was falling apart and I called him to tell him that earlier this week.
20 August 2009
Well... So Much for that thought....
A week or so back I reported that things were looking up again. Well... that just goes to show how quickly things change when it comes to my health and such.
I went and saw the doctor last week in hopes that I could start to taper off this F***ing prednisone that I have been on for way too long, and that's not going to happen quite yet. He put me on to some anitbiotics in hopes to help my body out as it is trying to keep the inflamation under control. One I have been on a couple of times before, and doesn't do anything to me except make me constantly thirsty. The other is a completely new one to me... and it is KICKING MY ASS!!! I don't know if anyone is familiar to the joys of taking Cipro, but if you are not, DO YOUR BEST TO KEEP IT THAT WAY! This is some extreme stuff! They use it for people that have had possible exposure to Anthrax. I know there's always a reason for everything that my doctor does, and he takes into account the possible side effects in compairison to the desired outcome and decides it's worth the risk... but this stuff is really messing with me! Between the return of my Tendonitis and the joint pain, it's causing a major care of insomnia!
Here's a prime example... It's now 2am. Normally I would have been asleep for at least a couple of hours by now... but NO! My body is absolutely spent, my bones and joints ache, my muscles are sore, my bowels are killing me... but my mind is running a million miles a minute and not letting me settle down. All I want to do is get some sleep... and I can't even get that done. Let me tell you my friends.... as some of you know IBD SUX!!!
I went and saw the doctor last week in hopes that I could start to taper off this F***ing prednisone that I have been on for way too long, and that's not going to happen quite yet. He put me on to some anitbiotics in hopes to help my body out as it is trying to keep the inflamation under control. One I have been on a couple of times before, and doesn't do anything to me except make me constantly thirsty. The other is a completely new one to me... and it is KICKING MY ASS!!! I don't know if anyone is familiar to the joys of taking Cipro, but if you are not, DO YOUR BEST TO KEEP IT THAT WAY! This is some extreme stuff! They use it for people that have had possible exposure to Anthrax. I know there's always a reason for everything that my doctor does, and he takes into account the possible side effects in compairison to the desired outcome and decides it's worth the risk... but this stuff is really messing with me! Between the return of my Tendonitis and the joint pain, it's causing a major care of insomnia!
Here's a prime example... It's now 2am. Normally I would have been asleep for at least a couple of hours by now... but NO! My body is absolutely spent, my bones and joints ache, my muscles are sore, my bowels are killing me... but my mind is running a million miles a minute and not letting me settle down. All I want to do is get some sleep... and I can't even get that done. Let me tell you my friends.... as some of you know IBD SUX!!!
13 August 2009
It's been a while since I updated this blog, so I thought that I would as I sit here and wait for the next bus to come by.
Life is interesting for me right now. I have a lot of things going on in my life and no time to make sense of any of them.
This past weekend was the Get Your Guts In Gear Ride for Crohn's and Colitis. It was an absolutely amazing experience that I wish to repeat for many years to come! I always meet some great people working this event, and hook back up with long time friends. The community built around this ride is absolutely amazing and they have been the greatest support group that I could have ever wished for! My Father rode for me this year as I was unable to get clearance from my doctors to participate. My body is doing better than it was a couple of months ago... but I am still a long way from being healthy again. I have to thank him for taking on that task for me! I was so dissapointed when the doctors told me that I couldn't ride this year because I had really gotten my hopes up and started my training, only for them to tell me that it might do more damage in the long term for me to participate. I love that community and will continue to do anything they need me to do to advance the cause
Work is getting Crazy again. For those that don't know... I work for MOViN 92.5 here in Seattle. Everyone is taking vacations this time of the year which means shuffling the schedule around to accomidate the needs of the station with the available staff. This always leads to me working some pretty f'd hours to make sure we have jocks on the air in the shifts that need them. I don't mind too much, it gives me airtime and I have a lot of fun with it. It drives me crazy some times, but I love my job and wouldn't imagine being happy doing ANYTHING else.
Kids grow up WAY too fast. It seems just like yesterday that Amber was in 2nd grade and Elijah was just born, sleeping in my arms in the hospital room. I was sooo terrified holding him at night, scared that I would fall asleep and drop him and not even realize it till he started screaming. Now Amber is heading into 5th grade (in the challenge program also!) and Elijah is almost a year old and starting to attempt to walk around. I blink and they grow up. Next thing you know She'll be bringing home guys to meet the parents and he'll be hiding his girlfriends from us so that we don't embarrass him in front of them.
Outside of that... Life seems to be good! I hope that this new course of medications that they have me on will help and get me back to where I need to be.
Much love for now!
Life is interesting for me right now. I have a lot of things going on in my life and no time to make sense of any of them.
This past weekend was the Get Your Guts In Gear Ride for Crohn's and Colitis. It was an absolutely amazing experience that I wish to repeat for many years to come! I always meet some great people working this event, and hook back up with long time friends. The community built around this ride is absolutely amazing and they have been the greatest support group that I could have ever wished for! My Father rode for me this year as I was unable to get clearance from my doctors to participate. My body is doing better than it was a couple of months ago... but I am still a long way from being healthy again. I have to thank him for taking on that task for me! I was so dissapointed when the doctors told me that I couldn't ride this year because I had really gotten my hopes up and started my training, only for them to tell me that it might do more damage in the long term for me to participate. I love that community and will continue to do anything they need me to do to advance the cause
Work is getting Crazy again. For those that don't know... I work for MOViN 92.5 here in Seattle. Everyone is taking vacations this time of the year which means shuffling the schedule around to accomidate the needs of the station with the available staff. This always leads to me working some pretty f'd hours to make sure we have jocks on the air in the shifts that need them. I don't mind too much, it gives me airtime and I have a lot of fun with it. It drives me crazy some times, but I love my job and wouldn't imagine being happy doing ANYTHING else.
Kids grow up WAY too fast. It seems just like yesterday that Amber was in 2nd grade and Elijah was just born, sleeping in my arms in the hospital room. I was sooo terrified holding him at night, scared that I would fall asleep and drop him and not even realize it till he started screaming. Now Amber is heading into 5th grade (in the challenge program also!) and Elijah is almost a year old and starting to attempt to walk around. I blink and they grow up. Next thing you know She'll be bringing home guys to meet the parents and he'll be hiding his girlfriends from us so that we don't embarrass him in front of them.
Outside of that... Life seems to be good! I hope that this new course of medications that they have me on will help and get me back to where I need to be.
Much love for now!
02 August 2009
It's the middle of the night and I am working.... Gotta love my JOB!
One of the things that I love the most about my job is that it is never the same from week to week. There is always something new and different happening around the office that makes every day just a ton of fun!
This weeks fun times are all around Vacations. I wish it was mine... but that comes soon enough. When
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